The EU code of conduct on agricultural data sharing was developed by private sector organizations and farmer associations and looks at general principles for sharing agricultural data from farm to farm products within the agro-food chain. It constitutes a joint effort from signatory organisations to shed greater light on contractual relations and provide guidance on the use of agricultural data.
SDA software provides an online analysis system with built-in disclosure protection parameters for restricted data. It was developed by UC Berkeley and is used by ICPR to access and analyze over 750 restricted datasets.
Researcher Passport is a digital identity, or profile, that captures and verifies the things about individual researchers that data stewards need to know in order to share their data with them. It’s a credentialing system based on trust modelled on ICPCR’s whitepaper ‘The Researcher Passport: Improving Data Access and Confidentiality Protection’.
The virtual data enclave (VDE) provides access to restricted-use data via a virtual machine launched from the researcher’s own computer but operating on a remote server. The virtual machine is isolated from the user’s physical computer, restricting the user from downloading files or parts of files to their physical computer. Users can use geospatial and statistical analysis tools to query the data.
DataSHIELD provides a novel technological solution that can circumvent some of the most basic challenges in facilitating the access of researchers and other health care professionals to individual level data.